CERTIFICATE

IMPACT FACTOR 2021

Subject Area

  • Life Sciences / Biology
  • Architecture / Building Management
  • Asian Studies
  • Business & Management
  • Chemistry
  • Computer Science
  • Economics & Finance
  • Engineering / Acoustics
  • Environmental Science
  • Agricultural Sciences
  • Pharmaceutical Sciences
  • General Sciences
  • Materials Science
  • Mathematics
  • Medicine
  • Nanotechnology & Nanoscience
  • Nonlinear Science
  • Chaos & Dynamical Systems
  • Physics
  • Social Sciences & Humanities

Why Us? >>

  • Open Access
  • Peer Reviewed
  • Rapid Publication
  • Life time hosting
  • Free promotion service
  • Free indexing service
  • More citations
  • Search engine friendly

Hearts of gold and hopeful hearts: lived experience of primary caregivers in taking care of individuals with dystonia

Author: 
Mary Antoinette F. Alinsangao, Pjeeco P. Bagasbas, Walther J. Talaban, Ryan Michael F. Oducado, Isabella Dianne L. Morga and Rachel Ann J. Respicio
Subject Area: 
Life Sciences
Abstract: 

Background: Progressive and involuntary in nature, X-linked Dystonia Parkinsonism (XDP) causes a great impact on the quality of life of the individuals affected. With all these changes involved in XDP, it necessitates the critical participation and support of caregivers in managing and coping with the disease. Published studies about XDP are mainly concerned with the experiences of individuals living with the disease, while the caregiver’s perspective is given less attention. Objective: This study aimed to explore the lived experience of primary caregivers in taking care of individuals diagnosed with XDP in Panay. Methods: A phenomenological research design was used as the strategy of inquiry to provide rich and thick description of the participants lived experience about the phenomenon. A semi-structured, face-to-face, in-depth interview was used to gather data among five purposively chosen participants. Interview transcripts were analyzed and interpreted using the method inspired by Colaizzi. Credibility, dependability, confirm ability and transferability were adopted to maintain trustworthiness. Results: Six themes emerged: (1) overwhelming odds; (2) seal of care; (3) inescapable reality; (4) dancing under the storm; (5) finding one’s feet in; and (6) when hope springs. Conclusion: Primary caregivers of individuals with XDP are faced with increasing demands and challenges that are often overlooked. Understanding their experience is fundamental in designing interventions that highlights caring for the carers themselves.

PDF file: 

CALL FOR PAPERS

 

ONLINE PAYPAL PAYMENT

IJMCE RECOMMENDATION

Advantages of IJCR

  • Rapid Publishing
  • Professional publishing practices
  • Indexing in leading database
  • High level of citation
  • High Qualitiy reader base
  • High level author suport

Plagiarism Detection

IJCR is following an instant policy on rejection those received papers with plagiarism rate of more than 20%. So, All of authors and contributors must check their papers before submission to making assurance of following our anti-plagiarism policies.

 

EDITORIAL BOARD

CHUDE NKIRU PATRICIA
Nigeria
Dr. Swamy KRM
India
Dr. Abdul Hannan A.M.S
Saudi Arabia.
Luai Farhan Zghair
Iraq
Hasan Ali Abed Al-Zu’bi
Jordanian
Fredrick OJIJA
Tanzanian
Firuza M. Tursunkhodjaeva
Uzbekistan
Faraz Ahmed Farooqi
Saudi Arabia
Eric Randy Reyes Politud
Philippines
Elsadig Gasoom FadelAlla Elbashir
Sudan
Eapen, Asha Sarah
United State
Dr.Arun Kumar A
India
Dr. Zafar Iqbal
Pakistan
Dr. SHAHERA S.PATEL
India
Dr. Ruchika Khanna
India
Dr. Recep TAS
Turkey
Dr. Rasha Ali Eldeeb
Egypt
Dr. Pralhad Kanhaiyalal Rahangdale
India
DR. PATRICK D. CERNA
Philippines
Dr. Nicolas Padilla- Raygoza
Mexico
Dr. Mustafa Y. G. Younis
Libiya
Dr. Muhammad shoaib Ahmedani
Saudi Arabia
DR. MUHAMMAD ISMAIL MOHMAND
United State
DR. MAHESH SHIVAJI CHAVAN
India
DR. M. ARUNA
India
Dr. Lim Gee Nee
Malaysia
Dr. Jatinder Pal Singh Chawla
India
DR. IRAM BOKHARI
Pakistan
Dr. FARHAT NAZ RAHMAN
Pakistan
Dr. Devendra kumar Gupta
India
Dr. ASHWANI KUMAR DUBEY
India
Dr. Ali Seidi
Iran
Dr. Achmad Choerudin
Indonesia
Dr Ashok Kumar Verma
India
Thi Mong Diep NGUYEN
France
Dr. Muhammad Akram
Pakistan
Dr. Imran Azad
Oman
Dr. Meenakshi Malik
India
Aseel Hadi Hamzah
Iraq
Anam Bhatti
Malaysia
Md. Amir Hossain
Bangladesh
Ahmet İPEKÇİ
Turkey
Mirzadi Gohari
Iran